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Health-related quality of life in a systematically assessed cohort of children and adults with urea cycle disorders.
Murali CN, Barber JR, McCarter R, Zhang A, Gallant N, Simpson K, Dorrani N, Wilkening GN, Hays RD, Lichter-Konecki U; Members of the Urea Cycle Disorders Consortium; Burrage LC, Nagamani SCS. Murali CN, et al. Among authors: hays rd. Mol Genet Metab. 2023 Nov;140(3):107696. doi: 10.1016/j.ymgme.2023.107696. Epub 2023 Sep 8. Mol Genet Metab. 2023. PMID: 37690181 Review.
Development of an ultra-short measure of eight domains of health-related quality of life for research and clinical care: the patient-reported outcomes measurement information system® PROMIS®-16 profile.
Edelen MO, Zeng C, Hays RD, Rodriguez A, Hanmer J, Baumhauer J, Cella D, Reeve BB, Herman PM. Edelen MO, et al. Among authors: hays rd. Qual Life Res. 2024 Feb 6. doi: 10.1007/s11136-023-03597-6. Online ahead of print. Qual Life Res. 2024. PMID: 38319489
677 results