Engaging stakeholders to design a comparative effectiveness trial in children with uncontrolled asthma

J Comp Eff Res. 2016 Jan;5(1):17-30. doi: 10.2217/cer.15.52. Epub 2015 Dec 21.

Abstract

Aim: To present the methods and outcomes of stakeholder engagement in the development of interventions for children presenting to the emergency department (ED) for uncontrolled asthma.

Methods: We engaged stakeholders (caregivers, physicians, nurses, administrators) from six EDs in a three-phase process to: define design requirements; prototype and refine; and evaluate.

Results: Interviews among 28 stakeholders yielded themes regarding in-home asthma management practices and ED discharge experiences. Quantitative and qualitative evaluation showed strong preference for the new discharge tool over current tools.

Conclusion: Engaging end-users in contextual inquiry resulted in CAPE (CHICAGO Action Plan after ED discharge), a new stakeholder-balanced discharge tool, which is being tested in a multicenter comparative effectiveness trial.

Keywords: asthma; health communication; patient discharge; pediatrics; stakeholder engagement; written action plan.

Publication types

  • Multicenter Study
  • Research Support, Non-U.S. Gov't

MeSH terms

  • Asthma / therapy*
  • Caregivers
  • Child
  • Comparative Effectiveness Research / methods*
  • Emergency Service, Hospital*
  • Humans
  • Interviews as Topic
  • Physicians