Health-related quality of life in parents of pediatric brain tumor survivors at the end of tumor-directed therapy

J Psychosoc Oncol. 2016 Jul-Aug;34(4):274-90. doi: 10.1080/07347332.2016.1175535.

Abstract

Objective: This study examines theoretical covariates of health-related quality of life (HRQL) in parents of pediatric brain tumor survivors (PBTS) following completion of tumor-directed therapy.

Methods: Fifty PBTS (ages 6-16) completed measures of neurocognitive functioning and their parents completed measures of family, survivor, and parent functioning.

Results: Caregiving demand, caregiver competence, and coping/supportive factors were associated with parental physical and psychosocial HRQL, when controlling for significant background and child characteristics.

Conclusion: Study findings can inform interventions to strengthen caregiver competence and family functioning following the completion of treatment, which may improve both parent and survivor outcomes.

Keywords: cancer; caregiving; family functioning; oncology; parents; quality of life.

Publication types

  • Research Support, N.I.H., Extramural

MeSH terms

  • Adaptation, Psychological
  • Adolescent
  • Adult
  • Brain Neoplasms / psychology
  • Brain Neoplasms / therapy*
  • Child
  • Family Relations / psychology
  • Female
  • Health Status*
  • Humans
  • Longitudinal Studies
  • Male
  • Middle Aged
  • Parents / psychology*
  • Quality of Life* / psychology
  • Survivors / psychology
  • Survivors / statistics & numerical data