Preliminary Validation of the HS-QoL: A Quality-of-Life Measure for Hidradenitis Suppurativa

J Cutan Med Surg. 2018 Mar/Apr;22(2):142-146. doi: 10.1177/1203475417736281. Epub 2017 Oct 9.

Abstract

Background: Hidradenitis suppurativa (HS) is a chronic inflammatory skin disease with adverse physical and psychosocial impacts. The development of an HS quality-of-life measure, HS-QoL, has been recently described.

Objective: This study was designed to validate the HS-QoL.

Method: Fifty-five patients with HS from 4 dermatology clinics completed the 30-minute online survey. Item reduction, reliability (internal consistency), and correlation analysis (to assess convergent validity) were conducted.

Results: The HS-QoL was reduced from 53 items to 44 items, resulting in a 7-subscale questionnaire. All subscales demonstrated excellent internal consistency, except for the support subscale, which had adequate internal consistency. All 7 HS-QoL subscales were related to other measures of QoL, life satisfaction, and mental health, which demonstrates convergent validity.

Conclusion: The 44-item HS-QoL demonstrated strong preliminary evidence of reliability (internal consistency) and convergent validity.

Keywords: HS-QoL; development; hidradenitis suppurativa; measure; patient-reported outcomes; psychometric validation; quality of life.

Publication types

  • Validation Study

MeSH terms

  • Adult
  • Female
  • Health Surveys
  • Hidradenitis Suppurativa* / psychology
  • Humans
  • Internet
  • Male
  • Middle Aged
  • Psychometrics
  • Quality of Life*
  • Young Adult