Patients' Positive and Negative Responses to Reading Mental Health Clinical Notes Online

Psychiatr Serv. 2018 May 1;69(5):593-596. doi: 10.1176/appi.ps.201700353. Epub 2018 Mar 1.

Abstract

Objective: This study describes responses to OpenNotes, clinical notes available online, among patients receiving mental health care and explores whether responses vary by patient demographic or clinical characteristics.

Methods: Survey data from 178 veterans receiving mental health treatment at a large Veterans Affairs medical center included patient-reported health self-efficacy, health knowledge, alliance with clinicians, and negative emotional responses after reading OpenNotes. Health care data were extracted from the patient care database.

Results: Reading OpenNotes helped many participants feel in control of their health care (49%) and have more trust in clinicians (45%), although a few (8%) frequently felt upset after reading their notes. In multivariate models, posttraumatic stress disorder was associated with increased patient-clinician alliance (p=.046) but also with negative emotional responses (p<.01).

Conclusions: Patients receiving mental health care frequently reported benefits from reading OpenNotes, yet some experienced negative responses.

Keywords: Mental health systems/hospitals; Patient perceptions; Patient portals; Posttraumatic stress disorder (PTSD); Psychiatry/general; Self-care.

Publication types

  • Research Support, U.S. Gov't, Non-P.H.S.

MeSH terms

  • Adult
  • Aged
  • Electronic Health Records*
  • Female
  • Health Knowledge, Attitudes, Practice*
  • Humans
  • Internet
  • Male
  • Mental Disorders / therapy*
  • Mental Health Services*
  • Middle Aged
  • Professional-Patient Relations*
  • Self Efficacy*
  • United States
  • United States Department of Veterans Affairs
  • Veterans