Shared Decision Making About Starting Anti-TNFs: A Pediatric Perspective

J Pediatr Gastroenterol Nutr. 2019 Mar;68(3):339-342. doi: 10.1097/MPG.0000000000002193.

Abstract

Shared decision making (SDM) is central to patient-centered medicine and has the potential to improve outcomes for pediatric patients with inflammatory bowel diseases. We surveyed specialists about their use of SDM in the decision to start a tumor necrosis factor-α inhibitor in pediatric patients. Results were compared between those who reported using SDM and those who did not. Of 209 respondents, 157 (75%) reported using SDM. Physician/practice characteristics were similar between users and nonusers. There were no statistically significant differences between groups in the components deemed important to the decision-making process nor the number of barriers or facilitators to SDM. Exploratory analyses suggested that physicians using SDM were more accepting of adolescent involvement in the decision-making process. Our results question the effectiveness of using reported barriers and facilitators to guide interventions to improve use of SDM, and suggest further work is needed to understand the adolescent role in decision making.

Publication types

  • Research Support, N.I.H., Extramural

MeSH terms

  • Adolescent
  • Adult
  • Aged
  • Arthritis, Juvenile / drug therapy*
  • Attitude of Health Personnel
  • Case-Control Studies
  • Decision Making*
  • Female
  • Gastroenterology / methods
  • Humans
  • Inflammatory Bowel Diseases / drug therapy*
  • Male
  • Middle Aged
  • Parents / psychology
  • Patient Participation*
  • Physician-Patient Relations
  • Rheumatology / methods
  • Surveys and Questionnaires
  • Tumor Necrosis Factor-alpha / therapeutic use*

Substances

  • TNF protein, human
  • Tumor Necrosis Factor-alpha