Reconsidering frameworks of Alzheimer's dementia when assessing psychosocial outcomes

Alzheimers Dement (N Y). 2019 Aug 17:5:388-397. doi: 10.1016/j.trci.2019.02.008. eCollection 2019.

Abstract

The purpose of this introductory article to the special issue on psychosocial outcome measures in Alzheimer's & Dementia: Translational Research & Clinical Interventions is to outline new frameworks to more effectively capture and measure the full range of how people living with Alzheimer's dementia and their family caregivers experience the disease process. Specifically, we consider the strengths and weaknesses of alternative perspectives, including person-centered, strength-based, and resilience-focused approaches that may complement and extend the dominant deficit paradigm to reflect the entirety of the dementia experience. Our aim is to encourage innovative methods to measure psychosocial aspects of Alzheimer's dementia and caregiving that have not yet received sufficient attention, including resources (e.g., services and supports) and positive caregiver and care recipient outcomes (e.g., positive mood and adaptation).

Keywords: Alzheimer's disease; Assessment; Care; Dementia; Measurement; Person-centered care; Positive; Psychosocial; Resilience; Social health; Successful aging; Well-Being.

Publication types

  • Review