Piloting a Survivorship Screening Tool in a Specialty Clinic for Survivors of Childhood Cancers

J Adolesc Young Adult Oncol. 2020 Jun;9(3):418-421. doi: 10.1089/jayao.2019.0079. Epub 2019 Dec 9.

Abstract

We piloted a patient-reported screener in a clinic for survivors of childhood cancers to facilitate detection of late effects, psychosocial needs, and distress. The mean number of patient-reported survivorship concerns endorsed per patient was 3.2; most frequent were difficulties with body weight, sleep, work/school, and fertility. Few individuals reported clinically significant distress or fear of recurrence. Electronic health record data produced an average of 2.3 late effects. Administration of a brief screener was effective in identifying additional current medical and psychosocial care needs among adult survivors of childhood cancers in a survivorship clinic.

Keywords: childhood cancer; health-related quality of life; late effects; psychosocial; survivorship.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adult
  • Cancer Care Facilities / standards*
  • Cancer Survivors / psychology*
  • Female
  • Humans
  • Male
  • Mass Screening
  • Middle Aged
  • Neoplasms / mortality*
  • Patient Reported Outcome Measures*
  • Pilot Projects
  • Survivorship
  • Young Adult