Validation of a Parent-Reported Hospital-to-Home Transition Experience Measure

Pediatrics. 2020 Feb;145(2):e20192150. doi: 10.1542/peds.2019-2150.

Abstract

Objectives: The Pediatric Transition Experience Measure (P-TEM) is an 8-item, parent-reported measure that globally assesses hospital-to-home transition quality from discharge through follow-up. Our goal was to examine the convergent validity of the P-TEM with existing, validated process and outcome measures of pediatric hospital-to-home transitions.

Methods: This was a prospective, cohort study of English-speaking parents and legal guardians who completed the P-TEM after their children's discharge from a tertiary children's hospital between January 2016 and October 2016. By using data from 3 surveys, we assessed convergent validity by examining associations between total and domain-specific P-TEM scores (0-100 scale) and 4 pediatric hospital-to-home transition validation measures: (1) Child Hospital Consumer Assessment of Healthcare Providers and Systems Discharge Composite, (2) Center of Excellence on Quality of Care Measures for Children With Complex Needs parent-reported transition measures, (3) change in health-related quality of life from admission to postdischarge, and (4) 30-day emergency department revisits or readmissions.

Results: P-TEM total scores were 7.5 points (95% confidence interval: 4.6 to 10.4) higher for participants with top-box responses on the Child Hospital Consumer Assessment of Healthcare Providers and Systems Discharge Composite compared with those of participants with lower Discharge Composite scores. Participants with highet P-TEM scores (ie, top-box responses) had 6.3-points-greater improvement (95% confidence interval: 2.8 to 9.8) in health-related quality of life compared with participants who reported lower P-TEM scores. P-TEM scores were not significantly associated with 7- or 30-day reuse.

Conclusions: The P-TEM demonstrated convergent validity with existing hospital-to-home process and outcome validation measures in a population of hospitalized children.

Publication types

  • Research Support, Non-U.S. Gov't
  • Research Support, U.S. Gov't, P.H.S.
  • Validation Study

MeSH terms

  • Adolescent
  • Child
  • Child, Preschool
  • Confidence Intervals
  • Emergency Service, Hospital / statistics & numerical data
  • Female
  • Health Care Surveys
  • Humans
  • Infant
  • Legal Guardians
  • Male
  • Outcome Assessment, Health Care*
  • Parents*
  • Patient Discharge / standards*
  • Patient Readmission
  • Prospective Studies
  • Quality Assurance, Health Care
  • Quality Improvement
  • Quality of Life*
  • Reproducibility of Results
  • Transitional Care / standards*