Optimizing health literacy to facilitate reproductive health decision-making in adolescent and young adults with cancer

Pediatr Blood Cancer. 2023 Sep;70 Suppl 5(Suppl 5):e28476. doi: 10.1002/pbc.28476. Epub 2020 Jul 6.

Abstract

Despite being considered "standard of care" by many organizations, fertility and reproductive health communications and counseling practices remain inconsistent for adolescents and young adults (AYAs) newly diagnosed with cancer and during survivorship. One factor known to affect how information is provided and received in the medical setting is health literacy. Providers should consider health literacy to optimize reproductive health communication with AYAs as they cope with their diagnosis, understand what it means for their future, process information about treatment options, learn about their potential harmful effects on fertility, make quick decisions about fertility preservation, and navigate a future family planning course. Thus, the objectives of this manuscript are to (a) summarize literature on reproductive health literacy; (b) describe health literacy frameworks; (c) examine ways to assess health literacy; and (d) identify ways to enhance clinician-patient communication in the AYA oncofertility setting.

Keywords: adolescents; cancer; health literacy; reproductive health; young adults.

Publication types

  • Research Support, N.I.H., Extramural

MeSH terms

  • Adolescent
  • Decision Making
  • Fertility Preservation* / psychology
  • Health Communication*
  • Health Literacy*
  • Humans
  • Neoplasms* / psychology
  • Neoplasms* / therapy
  • Reproductive Health
  • Young Adult