Differences in Processes Underlying Autism Service Engagement Among Latina and Non-Latina Mothers

J Autism Dev Disord. 2022 Dec;52(12):5440-5450. doi: 10.1007/s10803-021-05403-z. Epub 2022 Jan 21.

Abstract

Latino children on the autism spectrum experience less access to autism services and more barriers to service-use than non-Latino White children. Yet, existing research leaves unanswered questions about how cultural, family, and service system-level processes contribute to autism service-use disparities. This study aimed to qualitatively explore how Latina and non-Latina mothers experience similar encounters with autism services. Twenty Latina and non-Latina mothers completed semi-structured interviews regarding their experiences accessing services. Data were analyzed using applied thematic analysis. Ethnicity-based differences emerged in mothers' service-use motivations (i.e., desiring ongoing support vs. eventual departure), service evaluations (i.e., dissatisfaction vs. satisfaction), and service-seeking approaches (i.e., proactive vs. reactive). Findings illustrate how these processes underlying service engagement may contribute to service disparities for Latino children.

Keywords: Autism; Disparities; Expectations; Latinos; Service barriers; Service-seeking.

MeSH terms

  • Autism Spectrum Disorder* / therapy
  • Autistic Disorder* / therapy
  • Child
  • Child Development Disorders, Pervasive*
  • Female
  • Hispanic or Latino
  • Humans
  • Mothers