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Retention and research use of residual newborn screening bloodspots.
Botkin JR, Goldenberg AJ, Rothwell E, Anderson RA, Lewis MH. Botkin JR, et al. Among authors: lewis mh. Pediatrics. 2013 Jan;131(1):120-7. doi: 10.1542/peds.2012-0852. Epub 2012 Dec 3. Pediatrics. 2013. PMID: 23209103 Free PMC article. Review.
Parental permission for pilot newborn screening research: guidelines from the NBSTRN.
Botkin JR, Lewis MH, Watson MS, Swoboda KJ, Anderson R, Berry SA, Bonhomme N, Brosco JP, Comeau AM, Goldenberg A, Goldman E, Therrell B, Levy-Fisch J, Tarini B, Wilfond B; Bioethics and Legal Work Group of the Newborn Screening Translational Research Network. Botkin JR, et al. Among authors: lewis mh. Pediatrics. 2014 Feb;133(2):e410-7. doi: 10.1542/peds.2013-2271. Epub 2014 Jan 6. Pediatrics. 2014. PMID: 24394680 Free PMC article.
Research results: preserving newborn blood samples.
Lewis MH, Scheurer ME, Green RC, McGuire AL. Lewis MH, et al. Sci Transl Med. 2012 Nov 7;4(159):159cm12. doi: 10.1126/scitranslmed.3004474. Sci Transl Med. 2012. PMID: 23136040 Free PMC article.
Return of genomic results to research participants: the floor, the ceiling, and the choices in between.
Jarvik GP, Amendola LM, Berg JS, Brothers K, Clayton EW, Chung W, Evans BJ, Evans JP, Fullerton SM, Gallego CJ, Garrison NA, Gray SW, Holm IA, Kullo IJ, Lehmann LS, McCarty C, Prows CA, Rehm HL, Sharp RR, Salama J, Sanderson S, Van Driest SL, Williams MS, Wolf SM, Wolf WA; eMERGE Act-ROR Committee and CERC Committee; CSER Act-ROR Working Group; Burke W. Jarvik GP, et al. Am J Hum Genet. 2014 Jun 5;94(6):818-26. doi: 10.1016/j.ajhg.2014.04.009. Epub 2014 May 8. Am J Hum Genet. 2014. PMID: 24814192 Free PMC article.
326 results