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Psychological health and well-being in systemic sclerosis: State of the science and consensus research agenda.
Thombs BD, van Lankveld W, Bassel M, Baron M, Buzza R, Haslam S, Haythornthwaite JA, Hudson M, Jewett LR, Knafo R, Kwakkenbos L, Malcarne VL, Milette K, Motivala SJ, Newton EG, Nielson WR, Pacy M, Razykov I, Schieir O, Taillefer S, Worron-Sauve M. Thombs BD, et al. Among authors: nielson wr. Arthritis Care Res (Hoboken). 2010 Aug;62(8):1181-9. doi: 10.1002/acr.20187. Arthritis Care Res (Hoboken). 2010. PMID: 20235217 Free article. Review. No abstract available.
Validation of the Self-Efficacy for Managing Chronic Disease Scale: A Scleroderma Patient-Centered Intervention Network Cohort Study.
Riehm KE, Kwakkenbos L, Carrier ME, Bartlett SJ, Malcarne VL, Mouthon L, Nielson WR, Poiraudeau S, Nielsen K, Baron M, Frech T, Hudson M, Pope J, Sauve M, Suarez-Almazor ME, Wigley FM, Thombs BD; Scleroderma Patient-Centered Intervention Network Investigators. Riehm KE, et al. Among authors: nielson wr. Arthritis Care Res (Hoboken). 2016 Aug;68(8):1195-200. doi: 10.1002/acr.22807. Arthritis Care Res (Hoboken). 2016. PMID: 26619042 Free article.
Performance of the Patient-Reported Outcomes Measurement Information System-29 in scleroderma: a Scleroderma Patient-centered Intervention Network Cohort Study.
Kwakkenbos L, Thombs BD, Khanna D, Carrier ME, Baron M, Furst DE, Gottesman K, van den Hoogen F, Malcarne VL, Mayes MD, Mouthon L, Nielson WR, Poiraudeau S, Riggs R, Sauvé M, Wigley F, Hudson M, Bartlett SJ; SPIN Investigators. Kwakkenbos L, et al. Among authors: nielson wr. Rheumatology (Oxford). 2017 Aug 1;56(8):1302-1311. doi: 10.1093/rheumatology/kex055. Rheumatology (Oxford). 2017. PMID: 28431140 Free PMC article.
The Scleroderma Patient-Centered Intervention Network Cohort: baseline clinical features and comparison with other large scleroderma cohorts.
Dougherty DH, Kwakkenbos L, Carrier ME, Salazar G, Assassi S, Baron M, Bartlett SJ, Furst DE, Gottesman K, van den Hoogen F, Malcarne VL, Mouthon L, Nielson WR, Poiraudeau S, Sauvé M, Boire G, Bruns A, Chung L, Denton C, Dunne JV, Fortin P, Frech T, Gill A, Gordon J, Herrick AL, Hinchcliff M, Hudson M, Johnson SR, Jones N, Kafaja S, Larché M, Manning J, Pope J, Spiera R, Steen V, Sutton E, Thorne C, Wilcox P, Thombs BD, Mayes MD; SPIN Investigators. Dougherty DH, et al. Among authors: nielson wr. Rheumatology (Oxford). 2018 Sep 1;57(9):1623-1631. doi: 10.1093/rheumatology/key139. Rheumatology (Oxford). 2018. PMID: 29868924 Clinical Trial.
Identifying barriers and facilitators to physical activity for people with scleroderma: a nominal group technique study.
Harb S, Cumin J, Rice DB, Peláez S, Hudson M, Bartlett SJ, Roren A, Furst DE, Frech TM, Nguyen C, Nielson WR, Thombs BD, Shrier I; Scleroderma Patient-centered Intervention Network – Physical Activity Enhancement Patient Advisory Team. Harb S, et al. Among authors: nielson wr. Disabil Rehabil. 2021 Nov;43(23):3339-3346. doi: 10.1080/09638288.2020.1742391. Epub 2020 Mar 19. Disabil Rehabil. 2021. PMID: 32191536
Changes in mental health symptoms from pre-COVID-19 to COVID-19 among participants with systemic sclerosis from four countries: A Scleroderma Patient-centered Intervention Network (SPIN) Cohort study.
Thombs BD, Kwakkenbos L, Henry RS, Carrier ME, Patten S, Harb S, Bourgeault A, Tao L, Bartlett SJ, Mouthon L, Varga J, Benedetti A; SPIN Patient Advisors; SPIN Investigators. Thombs BD, et al. J Psychosom Res. 2020 Dec;139:110262. doi: 10.1016/j.jpsychores.2020.110262. Epub 2020 Oct 3. J Psychosom Res. 2020. PMID: 33070043 Free PMC article.
Factors associated with fears due to COVID-19: A Scleroderma Patient-centered Intervention Network (SPIN) COVID-19 cohort study.
Wu Y, Kwakkenbos L, Henry RS, Carrier ME, Gagarine M, Harb S, Bourgeault A, Tao L, Carboni-Jiménez A, Negeri Z, Patten S, Bartlett SJ, Mouthon L, Varga J, Benedetti A, Thombs BD; SPIN Patient Advisors; SPIN Investigators. Wu Y, et al. J Psychosom Res. 2021 Jan;140:110314. doi: 10.1016/j.jpsychores.2020.110314. Epub 2020 Nov 25. J Psychosom Res. 2021. PMID: 33271402 Free PMC article.
103 results