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Response to "Shifting the conversation on outcomes reporting".
Peipert JD, Abecassis MMI, Butt Z, Cella D, Ladner DP. Peipert JD, et al. Am J Transplant. 2018 Sep;18(9):2368-2369. doi: 10.1111/ajt.14968. Epub 2018 Jun 28. Am J Transplant. 2018. PMID: 29894025 Free article. No abstract available.
Establishing a Core Outcome Measure for Life Participation: A Standardized Outcomes in Nephrology-kidney Transplantation Consensus Workshop Report.
Ju A, Josephson MA, Butt Z, Jowsey-Gregoire S, Tan J, Taylor Q, Fowler K, Dobbels F, Caskey F, Jha V, Locke J, Knoll G, Ahn C, Hanson CS, Sautenet B, Manera K, Craig JC, Howell M, Rutherford C, Tong A, Harden P, Hawley C, Holdaas H, Israni A, Jesse M, Kane B, Kanellis J, Kiberd B, Kim J, Larsen C, Leichtman A, Lentine K, Malone A, Mannon R, Oberbauer R, Patzer R, Peipert JD, Phan HA, Poggio E, Reed R, Scandling J, Tang I, Watson C, Contrares D, Contreras P, Cross D, Juodvalkis E, Koide D, Koide J, Kozarewicz A, Kozarewicz L, Kozarewicz R, Koritala A, Lisiecki E, Lipuma C, Lyman M, Mueller R, Mueller G, Noble L, Nolan N, Nolan S, Thomas J, Urbancyzk L, Zerante J, Zerante S; SONG-Tx Life Participation Workshop Investigators; Health professionals (*includes 2 patients from the SONG-Tx Graft Health Expert Working Group); Patients and family members. Ju A, et al. Among authors: peipert jd. Transplantation. 2019 Jun;103(6):1199-1205. doi: 10.1097/TP.0000000000002476. Transplantation. 2019. PMID: 30300284
Assessing Preferences for Rare Disease Treatment: Qualitative Development of the Paroxysmal Nocturnal Hemoglobinuria Patient Preference Questionnaire (PNH-PPQ©).
Kaiser K, Yount SE, Martens CE, Webster KA, Shaunfield S, Sparling A, Peipert JD, Cella D, Rottinghaus ST, Donato BMK, Wells R, Tomazos I. Kaiser K, et al. Patient Prefer Adherence. 2020 Apr 5;14:705-715. doi: 10.2147/PPA.S233830. eCollection 2020. Patient Prefer Adherence. 2020. PMID: 32308375 Free PMC article.
401 results