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The Scleroderma Patient-centered Intervention Network (SPIN) Cohort: protocol for a cohort multiple randomised controlled trial (cmRCT) design to support trials of psychosocial and rehabilitation interventions in a rare disease context.
Kwakkenbos L, Jewett LR, Baron M, Bartlett SJ, Furst D, Gottesman K, Khanna D, Malcarne VL, Mayes MD, Mouthon L, Poiraudeau S, Sauve M, Nielson WR, Poole JL, Assassi S, Boutron I, Ells C, van den Ende CH, Hudson M, Impens A, Körner A, Leite C, Costa Maia A, Mendelson C, Pope J, Steele RJ, Suarez-Almazor ME, Ahmed S, Coronado-Montoya S, Delisle VC, Gholizadeh S, Jang Y, Levis B, Milette K, Mills SD, Razykov I, Fox RS, Thombs BD. Kwakkenbos L, et al. Among authors: malcarne vl. BMJ Open. 2013 Aug 7;3(8):e003563. doi: 10.1136/bmjopen-2013-003563. BMJ Open. 2013. PMID: 23929922 Free PMC article.
Psychological health and well-being in systemic sclerosis: State of the science and consensus research agenda.
Thombs BD, van Lankveld W, Bassel M, Baron M, Buzza R, Haslam S, Haythornthwaite JA, Hudson M, Jewett LR, Knafo R, Kwakkenbos L, Malcarne VL, Milette K, Motivala SJ, Newton EG, Nielson WR, Pacy M, Razykov I, Schieir O, Taillefer S, Worron-Sauve M. Thombs BD, et al. Among authors: malcarne vl. Arthritis Care Res (Hoboken). 2010 Aug;62(8):1181-9. doi: 10.1002/acr.20187. Arthritis Care Res (Hoboken). 2010. PMID: 20235217 Free article. Review. No abstract available.
New directions for patient-centred care in scleroderma: the Scleroderma Patient-centred Intervention Network (SPIN).
Thombs BD, Jewett LR, Assassi S, Baron M, Bartlett SJ, Maia AC, El-Baalbaki G, Furst DE, Gottesman K, Haythornthwaite JA, Hudson M, Impens A, Korner A, Leite C, Mayes MD, Malcarne VL, Motivala SJ, Mouthon L, Nielson WR, Plante D, Poiraudeau S, Poole JL, Pope J, Sauve M, Steele RJ, Suarez-Almazor ME, Taillefer S, van den Ende CH, Arthurs E, Bassel M, Delisle V, Milette K, Leavens A, Razykov I, Khanna D. Thombs BD, et al. Among authors: malcarne vl. Clin Exp Rheumatol. 2012 Mar-Apr;30(2 Suppl 71):S23-9. Epub 2012 May 29. Clin Exp Rheumatol. 2012. PMID: 22244687 Free PMC article.
Measuring illness behavior in patients with systemic sclerosis.
Merz EL, Malcarne VL, Roesch SC, Sharif R, Harper BE, Draeger HT, Gonzalez EB, Nair DK, McNearney TA, Assassi S, Mayes MD. Merz EL, et al. Among authors: malcarne vl. Arthritis Care Res (Hoboken). 2013 Apr;65(4):585-93. doi: 10.1002/acr.21874. Arthritis Care Res (Hoboken). 2013. PMID: 23097280 Free PMC article.
Psychosocial aspects of systemic sclerosis.
Malcarne VL, Fox RS, Mills SD, Gholizadeh S. Malcarne VL, et al. Curr Opin Rheumatol. 2013 Nov;25(6):707-13. doi: 10.1097/01.bor.0000434666.47397.c2. Curr Opin Rheumatol. 2013. PMID: 24067378 Review.
185 results