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When Participants in Genomic Research Grow Up: Contact and Consent at the Age of Majority.
Brothers KB, Holm IA, Childerhose JE, Antommaria AHM, Bernhardt BA, Clayton EW, Gelb BD, Joffe S, Lynch JA, McCormick JB, McCullough LB, Parsons DW, Sundaresan AS, Wolf WA, Yu JH, Wilfond BS; Pediatrics Workgroup of the Clinical Sequencing Exploratory Research (CSER) Consortium. Brothers KB, et al. Among authors: mccullough lb. J Pediatr. 2016 Jan;168:226-231.e1. doi: 10.1016/j.jpeds.2015.09.020. Epub 2015 Oct 23. J Pediatr. 2016. PMID: 26477867 Free PMC article. No abstract available.
Consent: informed, simple, implied and presumed.
McCullough LB, McGuire AL, Whitney SN. McCullough LB, et al. Am J Bioeth. 2007 Dec;7(12):49-50; discussion W3-4. doi: 10.1080/15265160701710329. Am J Bioeth. 2007. PMID: 18098025 No abstract available.
DNA data sharing: research participants' perspectives.
McGuire AL, Hamilton JA, Lunstroth R, McCullough LB, Goldman A. McGuire AL, et al. Among authors: mccullough lb. Genet Med. 2008 Jan;10(1):46-53. doi: 10.1097/GIM.0b013e31815f1e00. Genet Med. 2008. PMID: 18197056 Free PMC article.
Point-counterpoint. Ethics and genomic incidental findings.
McGuire AL, Joffe S, Koenig BA, Biesecker BB, McCullough LB, Blumenthal-Barby JS, Caulfield T, Terry SF, Green RC. McGuire AL, et al. Among authors: mccullough lb. Science. 2013 May 31;340(6136):1047-8. doi: 10.1126/science.1240156. Epub 2013 May 16. Science. 2013. PMID: 23686340 Free PMC article. No abstract available.
649 results