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Validation of the Self-Efficacy for Managing Chronic Disease Scale: A Scleroderma Patient-Centered Intervention Network Cohort Study.
Riehm KE, Kwakkenbos L, Carrier ME, Bartlett SJ, Malcarne VL, Mouthon L, Nielson WR, Poiraudeau S, Nielsen K, Baron M, Frech T, Hudson M, Pope J, Sauve M, Suarez-Almazor ME, Wigley FM, Thombs BD; Scleroderma Patient-Centered Intervention Network Investigators. Riehm KE, et al. Among authors: malcarne vl. Arthritis Care Res (Hoboken). 2016 Aug;68(8):1195-200. doi: 10.1002/acr.22807. Arthritis Care Res (Hoboken). 2016. PMID: 26619042 Free article.
Psychological health and well-being in systemic sclerosis: State of the science and consensus research agenda.
Thombs BD, van Lankveld W, Bassel M, Baron M, Buzza R, Haslam S, Haythornthwaite JA, Hudson M, Jewett LR, Knafo R, Kwakkenbos L, Malcarne VL, Milette K, Motivala SJ, Newton EG, Nielson WR, Pacy M, Razykov I, Schieir O, Taillefer S, Worron-Sauve M. Thombs BD, et al. Among authors: malcarne vl. Arthritis Care Res (Hoboken). 2010 Aug;62(8):1181-9. doi: 10.1002/acr.20187. Arthritis Care Res (Hoboken). 2010. PMID: 20235217 Free article. Review. No abstract available.
New directions for patient-centred care in scleroderma: the Scleroderma Patient-centred Intervention Network (SPIN).
Thombs BD, Jewett LR, Assassi S, Baron M, Bartlett SJ, Maia AC, El-Baalbaki G, Furst DE, Gottesman K, Haythornthwaite JA, Hudson M, Impens A, Korner A, Leite C, Mayes MD, Malcarne VL, Motivala SJ, Mouthon L, Nielson WR, Plante D, Poiraudeau S, Poole JL, Pope J, Sauve M, Steele RJ, Suarez-Almazor ME, Taillefer S, van den Ende CH, Arthurs E, Bassel M, Delisle V, Milette K, Leavens A, Razykov I, Khanna D. Thombs BD, et al. Among authors: malcarne vl. Clin Exp Rheumatol. 2012 Mar-Apr;30(2 Suppl 71):S23-9. Epub 2012 May 29. Clin Exp Rheumatol. 2012. PMID: 22244687 Free PMC article.
Measuring illness behavior in patients with systemic sclerosis.
Merz EL, Malcarne VL, Roesch SC, Sharif R, Harper BE, Draeger HT, Gonzalez EB, Nair DK, McNearney TA, Assassi S, Mayes MD. Merz EL, et al. Among authors: malcarne vl. Arthritis Care Res (Hoboken). 2013 Apr;65(4):585-93. doi: 10.1002/acr.21874. Arthritis Care Res (Hoboken). 2013. PMID: 23097280 Free PMC article.
The Scleroderma Patient-centered Intervention Network (SPIN) Cohort: protocol for a cohort multiple randomised controlled trial (cmRCT) design to support trials of psychosocial and rehabilitation interventions in a rare disease context.
Kwakkenbos L, Jewett LR, Baron M, Bartlett SJ, Furst D, Gottesman K, Khanna D, Malcarne VL, Mayes MD, Mouthon L, Poiraudeau S, Sauve M, Nielson WR, Poole JL, Assassi S, Boutron I, Ells C, van den Ende CH, Hudson M, Impens A, Körner A, Leite C, Costa Maia A, Mendelson C, Pope J, Steele RJ, Suarez-Almazor ME, Ahmed S, Coronado-Montoya S, Delisle VC, Gholizadeh S, Jang Y, Levis B, Milette K, Mills SD, Razykov I, Fox RS, Thombs BD. Kwakkenbos L, et al. Among authors: malcarne vl. BMJ Open. 2013 Aug 7;3(8):e003563. doi: 10.1136/bmjopen-2013-003563. BMJ Open. 2013. PMID: 23929922 Free PMC article.
Psychosocial Aspects of Scleroderma.
Kwakkenbos L, Delisle VC, Fox RS, Gholizadeh S, Jewett LR, Levis B, Milette K, Mills SD, Malcarne VL, Thombs BD. Kwakkenbos L, et al. Among authors: malcarne vl. Rheum Dis Clin North Am. 2015 Aug;41(3):519-28. doi: 10.1016/j.rdc.2015.04.010. Epub 2015 May 27. Rheum Dis Clin North Am. 2015. PMID: 26210133 Review.
Development and Validation of the Body Concealment Scale for Scleroderma.
Jewett LR, Malcarne VL, Kwakkenbos L, Harcourt D, Rumsey N, Körner A, Steele RJ, Hudson M, Baron M, Haythornthwaite JA, Heinberg L, Wigley FM, Thombs BD; Canadian Scleroderma Research Group. Jewett LR, et al. Among authors: malcarne vl. Arthritis Care Res (Hoboken). 2016 Aug;68(8):1158-65. doi: 10.1002/acr.22819. Arthritis Care Res (Hoboken). 2016. PMID: 26663624 Free PMC article.
Reasons for non-participation in scleroderma support groups.
Delisle VC, Gumuchian ST, Pelaez S, Malcarne VL, El-Baalbaki G, Körner A, Hudson M, Baron M, Thombs BD; the Scleroderma Support Group Project Advisory Team. Delisle VC, et al. Among authors: malcarne vl. Clin Exp Rheumatol. 2016 Sep-Oct;34 Suppl 100(5):56-62. Epub 2016 Feb 25. Clin Exp Rheumatol. 2016. PMID: 26950221
186 results