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Adding patient-reported outcomes to a multisite registry to quantify quality of life and experiences of disease and treatment for youth with juvenile idiopathic arthritis.
Weitzman ER, Wisk LE, Salimian PK, Magane KM, Dedeoglu F, Hersh AO, Kimura Y, Mandl KD, Ringold S, Natter M. Weitzman ER, et al. Among authors: natter m. J Patient Rep Outcomes. 2018;2:1. doi: 10.1186/s41687-017-0025-2. Epub 2018 Jan 4. J Patient Rep Outcomes. 2018. PMID: 29645010 Free PMC article.
Consensus treatment plans for new-onset systemic juvenile idiopathic arthritis.
DeWitt EM, Kimura Y, Beukelman T, Nigrovic PA, Onel K, Prahalad S, Schneider R, Stoll ML, Angeles-Han S, Milojevic D, Schikler KN, Vehe RK, Weiss JE, Weiss P, Ilowite NT, Wallace CA; Juvenile Idiopathic Arthritis Disease-specific Research Committee of Childhood Arthritis Rheumatology and Research Alliance. DeWitt EM, et al. Arthritis Care Res (Hoboken). 2012 Jul;64(7):1001-10. doi: 10.1002/acr.21625. Arthritis Care Res (Hoboken). 2012. PMID: 22290637 Free PMC article.
An i2b2-based, generalizable, open source, self-scaling chronic disease registry.
Natter MD, Quan J, Ortiz DM, Bousvaros A, Ilowite NT, Inman CJ, Marsolo K, McMurry AJ, Sandborg CI, Schanberg LE, Wallace CA, Warren RW, Weber GM, Mandl KD. Natter MD, et al. J Am Med Inform Assoc. 2013 Jan 1;20(1):172-9. doi: 10.1136/amiajnl-2012-001042. Epub 2012 Jun 25. J Am Med Inform Assoc. 2013. PMID: 22733975 Free PMC article.
Using registries to identify adverse events in rheumatic diseases.
Lionetti G, Kimura Y, Schanberg LE, Beukelman T, Wallace CA, Ilowite NT, Winsor J, Fox K, Natter M, Sundy JS, Brodsky E, Curtis JR, Del Gaizo V, Iyasu S, Jahreis A, Meeker-O'Connell A, Mittleman BB, Murphy BM, Peterson ED, Raymond SC, Setoguchi S, Siegel JN, Sobel RE, Solomon D, Southwood TR, Vesely R, White PH, Wulffraat NM, Sandborg CI. Lionetti G, et al. Among authors: natter m. Pediatrics. 2013 Nov;132(5):e1384-94. doi: 10.1542/peds.2013-0755. Epub 2013 Oct 21. Pediatrics. 2013. PMID: 24144710 Free PMC article. Review.
Childhood Arthritis and Rheumatology Research Alliance consensus treatment plans for new-onset polyarticular juvenile idiopathic arthritis.
Ringold S, Weiss PF, Colbert RA, DeWitt EM, Lee T, Onel K, Prahalad S, Schneider R, Shenoi S, Vehe RK, Kimura Y; Juvenile Idiopathic Arthritis Research Committee of the Childhood Arthritis and Rheumatology Research Alliance. Ringold S, et al. Arthritis Care Res (Hoboken). 2014 Jul;66(7):1063-72. doi: 10.1002/acr.22259. Arthritis Care Res (Hoboken). 2014. PMID: 24339215 Free PMC article.
Scalable Collaborative Infrastructure for a Learning Healthcare System (SCILHS): architecture.
Mandl KD, Kohane IS, McFadden D, Weber GM, Natter M, Mandel J, Schneeweiss S, Weiler S, Klann JG, Bickel J, Adams WG, Ge Y, Zhou X, Perkins J, Marsolo K, Bernstam E, Showalter J, Quarshie A, Ofili E, Hripcsak G, Murphy SN. Mandl KD, et al. Among authors: natter m. J Am Med Inform Assoc. 2014 Jul-Aug;21(4):615-20. doi: 10.1136/amiajnl-2014-002727. Epub 2014 May 12. J Am Med Inform Assoc. 2014. PMID: 24821734 Free PMC article.
Phenotypic Characterization of Juvenile Idiopathic Arthritis in African American Children.
Fitzpatrick L, Broadaway KA, Ponder L, Angeles-Han ST, Jenkins K, Rouster-Stevens K, Pelajo CF, Conneely K, Epstein MP, Lopez-Benitez J, Vogler LB, Prahalad S; CARRA Registry Investigators. Fitzpatrick L, et al. J Rheumatol. 2016 Apr;43(4):799-803. doi: 10.3899/jrheum.150891. Epub 2016 Feb 15. J Rheumatol. 2016. PMID: 26879356 Free PMC article.
97 results