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Diagnostic delays in vasculitis and factors associated with time to diagnosis.
Sreih AG, Cronin K, Shaw DG, Young K, Burroughs C, Kullman J, Machireddy K, McAlear CA, Merkel PA; Vasculitis Patient-Powered Research Network. Sreih AG, et al. Among authors: burroughs c. Orphanet J Rare Dis. 2021 Apr 21;16(1):184. doi: 10.1186/s13023-021-01794-5. Orphanet J Rare Dis. 2021. PMID: 33882989 Free PMC article.
Experience With Direct-to-Patient Recruitment for Enrollment Into a Clinical Trial in a Rare Disease: A Web-Based Study.
Krischer J, Cronholm PF, Burroughs C, McAlear CA, Borchin R, Easley E, Davis T, Kullman J, Carette S, Khalidi N, Koening C, Langford CA, Monach P, Moreland L, Pagnoux C, Specks U, Sreih AG, Ytterberg S, Merkel PA; Vasculitis Clinical Research Consortium. Krischer J, et al. Among authors: burroughs c. J Med Internet Res. 2017 Feb 28;19(2):e50. doi: 10.2196/jmir.6798. J Med Internet Res. 2017. PMID: 28246067 Free PMC article. Clinical Trial.
Impact of vasculitis on employment and income.
Barra L, Borchin RL, Burroughs C, Casey GC, McAlear CA, Sreih AG, Young K, Merkel PA, Pagnoux C; Vasculitis Clinical Research Consortium and the Vasculitis Patient-Powered Research Network.. Barra L, et al. Among authors: burroughs c. Clin Exp Rheumatol. 2018 Mar-Apr;36 Suppl 111(2):58-64. Epub 2018 Jan 10. Clin Exp Rheumatol. 2018. PMID: 29352849 Free PMC article.
Patient involvement in medical research: what patients and physicians learn from each other.
Young K, Kaminstein D, Olivos A, Burroughs C, Castillo-Lee C, Kullman J, McAlear C, Shaw DG, Sreih A, Casey G; Vasculitis Patient-Powered Research Network; Merkel PA. Young K, et al. Among authors: burroughs c. Orphanet J Rare Dis. 2019 Jan 24;14(1):21. doi: 10.1186/s13023-018-0969-1. Orphanet J Rare Dis. 2019. PMID: 30678705 Free PMC article.
A novel approach to conducting clinical trials in the community setting: utilizing patient-driven platforms and social media to drive web-based patient recruitment.
Applequist J, Burroughs C, Ramirez A Jr, Merkel PA, Rothenberg ME, Trapnell B, Desnick RJ, Sahin M, Krischer JP. Applequist J, et al. Among authors: burroughs c. BMC Med Res Methodol. 2020 Mar 13;20(1):58. doi: 10.1186/s12874-020-00926-y. BMC Med Res Methodol. 2020. PMID: 32169041 Free PMC article.
Effects of the COVID-19 Pandemic on Patients Living With Vasculitis.
Banerjee S, George M, Young K, Venkatachalam S, Gordon J, Burroughs C, Curtis D, Ferrada M, Gavigan K, Grayson PC, Kullman J, Danila MI, Curtis JR, Shaw DG, Benjamin Nowell W, Merkel PA; Vasculitis Patient‐Powered Research Network. Banerjee S, et al. Among authors: burroughs c. ACR Open Rheumatol. 2021 Jan;3(1):17-24. doi: 10.1002/acr2.11204. Epub 2020 Dec 8. ACR Open Rheumatol. 2021. PMID: 33784021 Free PMC article.
Self-Reported Data and Physician-Reported Data in Patients With Eosinophilic Granulomatosis With Polyangiitis: Comparative Analysis.
Doubelt I, Springer JM, Kermani TA, Sreih AG, Burroughs C, Cuthbertson D, Carette S, Khalidi NA, Koening CL, Langford C, McAlear CA, Moreland LW, Monach PA, Shaw DG, Seo P, Specks U, Warrington KJ, Young K, Merkel PA, Pagnoux C. Doubelt I, et al. Among authors: burroughs c. Interact J Med Res. 2022 May 25;11(1):e27273. doi: 10.2196/27273. Interact J Med Res. 2022. PMID: 35612893 Free PMC article.
64 results