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Diagnostic delays in vasculitis and factors associated with time to diagnosis.
Sreih AG, Cronin K, Shaw DG, Young K, Burroughs C, Kullman J, Machireddy K, McAlear CA, Merkel PA; Vasculitis Patient-Powered Research Network. Sreih AG, et al. Among authors: shaw dg. Orphanet J Rare Dis. 2021 Apr 21;16(1):184. doi: 10.1186/s13023-021-01794-5. Orphanet J Rare Dis. 2021. PMID: 33882989 Free PMC article.
Patient involvement in medical research: what patients and physicians learn from each other.
Young K, Kaminstein D, Olivos A, Burroughs C, Castillo-Lee C, Kullman J, McAlear C, Shaw DG, Sreih A, Casey G; Vasculitis Patient-Powered Research Network; Merkel PA. Young K, et al. Among authors: shaw dg. Orphanet J Rare Dis. 2019 Jan 24;14(1):21. doi: 10.1186/s13023-018-0969-1. Orphanet J Rare Dis. 2019. PMID: 30678705 Free PMC article.
Effects of the COVID-19 Pandemic on Patients Living With Vasculitis.
Banerjee S, George M, Young K, Venkatachalam S, Gordon J, Burroughs C, Curtis D, Ferrada M, Gavigan K, Grayson PC, Kullman J, Danila MI, Curtis JR, Shaw DG, Benjamin Nowell W, Merkel PA; Vasculitis Patient‐Powered Research Network. Banerjee S, et al. Among authors: shaw dg. ACR Open Rheumatol. 2021 Jan;3(1):17-24. doi: 10.1002/acr2.11204. Epub 2020 Dec 8. ACR Open Rheumatol. 2021. PMID: 33784021 Free PMC article.
Medication Interruptions and Subsequent Disease Flares During the COVID-19 Pandemic: A Longitudinal Online Study of Patients With Rheumatic Disease.
Dharia T, Venkatachalam S, Baker JF, Banerjee S, Curtis D, Danila MI, Gavigan K, Gordon J, Merkel PA, Shaw DG, Young K, Curtis JR, Nowell WB, George MD. Dharia T, et al. Among authors: shaw dg. Arthritis Care Res (Hoboken). 2022 May;74(5):733-740. doi: 10.1002/acr.24837. Epub 2022 Mar 8. Arthritis Care Res (Hoboken). 2022. PMID: 34890121 Free PMC article.
Patient Perceptions and Preferences Regarding Telemedicine for Autoimmune Rheumatic Diseases Care During the COVID-19 Pandemic.
Danila MI, Gavigan K, Rivera E, Nowell WB, George MD, Curtis JR, Christopher-Stein L, Banerjee S, Merkel PA, Young K, Shaw DG, Gordon J, Venkatachalam S. Danila MI, et al. Among authors: shaw dg. Arthritis Care Res (Hoboken). 2022 Jul;74(7):1049-1057. doi: 10.1002/acr.24860. Epub 2022 Apr 13. Arthritis Care Res (Hoboken). 2022. PMID: 35040274 Free PMC article.
Self-Reported Data and Physician-Reported Data in Patients With Eosinophilic Granulomatosis With Polyangiitis: Comparative Analysis.
Doubelt I, Springer JM, Kermani TA, Sreih AG, Burroughs C, Cuthbertson D, Carette S, Khalidi NA, Koening CL, Langford C, McAlear CA, Moreland LW, Monach PA, Shaw DG, Seo P, Specks U, Warrington KJ, Young K, Merkel PA, Pagnoux C. Doubelt I, et al. Among authors: shaw dg. Interact J Med Res. 2022 May 25;11(1):e27273. doi: 10.2196/27273. Interact J Med Res. 2022. PMID: 35612893 Free PMC article.
Engaging Multistakeholder Perspectives to Identify Patient-Centered Research Priorities Regarding Vaccine Uptake Among Adults With Autoimmune Conditions.
Venkatachalam S, Gavigan K, Banerjee S, Gordon J, Emrich L, Sullivan H, Blazer A, Banbury B, Weaver KN, Stradford L, Dronadula V, Degrassi A, Merkel PA, Shaw DG, Larsen K, Curtis JR, McBurney RN, Kappelman MD, George MD, Nowell WB. Venkatachalam S, et al. Among authors: shaw dg. ACR Open Rheumatol. 2023 Jun;5(6):290-297. doi: 10.1002/acr2.11546. Epub 2023 May 1. ACR Open Rheumatol. 2023. PMID: 37127530 Free PMC article.
Assessment of Real-World Patient-Reported Outcomes in Patients Initiating Biologic Agents for the Treatment of Autoimmune Diseases: An Observational Study in Four Patient-Powered Research Networks.
Beukelman T, Long MD, Rhee RL, Kappelman MD, Merkel PA, Nowell WB, Clinton C, Ringold S, Del Gaizo V, Price B, Shaw DG, Venkatachalam S, Cuthbertson D, Xie F, Zhang X, Curtis JR. Beukelman T, et al. Among authors: shaw dg. Patient Relat Outcome Meas. 2023 Jun 13;14:171-180. doi: 10.2147/PROM.S392174. eCollection 2023. Patient Relat Outcome Meas. 2023. PMID: 37333063 Free PMC article.
129 results