Lewis H - Search Results

1

Forming Clinician-Parent Therapeutic Alliance for Children With Severe Neurologic Impairment.

Bogetz JF, Trowbridge A, Lewis H, Jonas D, Hauer J, Rosenberg AR. Bogetz JF, et al. Among authors: lewis h. Hosp Pediatr. 2022 Mar 1;12(3):282-292. doi: 10.1542/hpeds.2021-006316. Hosp Pediatr. 2022. PMID: 35141756

2

Parents Are the Experts: A Qualitative Study of the Experiences of Parents of Children With Severe Neurological Impairment During Decision-Making.

Bogetz JF, Trowbridge A, Lewis H, Shipman KJ, Jonas D, Hauer J, Rosenberg AR. Bogetz JF, et al. Among authors: lewis h. J Pain Symptom Manage. 2021 Dec;62(6):1117-1125. doi: 10.1016/j.jpainsymman.2021.06.011. Epub 2021 Jun 17. J Pain Symptom Manage. 2021. PMID: 34147578 Free PMC article.

3

From Monochromatic to Technicolor: Parent Perspectives on Challenges and Approaches to Seeing Children with Severe Neurological Impairment Holistically.

Bogetz JF, Lewis H, Trowbridge A, Jonas D, Hauer J, Wilfond BS. Bogetz JF, et al. Among authors: lewis h. J Palliat Med. 2022 Mar;25(3):437-444. doi: 10.1089/jpm.2021.0344. Epub 2021 Sep 22. J Palliat Med. 2022. PMID: 34551279

4

A Qualitative Study of Clinicians and Parents of Children with Severe Neurological Impairment on Tools to Support Family-Centered Care.

Lewis H, Trowbridge A, Jonas D, Rosenberg AR, Bogetz JF. Lewis H, et al. J Palliat Med. 2022 Sep;25(9):1338-1344. doi: 10.1089/jpm.2021.0579. Epub 2022 May 20. J Palliat Med. 2022. PMID: 35593900 Free PMC article.

5

Patient perspectives on how to demonstrate respect: Implications for clinicians and healthcare organizations.

Bridges C, Duenas DM, Lewis H, Anderson K, Opel DJ, Wilfond BS, Kraft SA. Bridges C, et al. Among authors: lewis h. PLoS One. 2021 Apr 29;16(4):e0250999. doi: 10.1371/journal.pone.0250999. eCollection 2021. PLoS One. 2021. PMID: 33914815 Free PMC article.

6

An accessible, relational, inclusive, and actionable (ARIA) model of genetic counseling compared with usual care: Results of a randomized controlled trial.

Joseph G, Leo MC, Riddle L, Guerra C, Amendola LM, Gilmore MJ, Rolf BA, Dorschner MO, Zepp J, Biesecker BB, Caruncho M, Hunter JE, Keast E, Lewis HS, Duenas D, Kauffman T, Bulkley JE, Anderson KP, Jarvik GP, Goddard KAB, Wilfond BS; CHARM Study Team. Joseph G, et al. Genet Med. 2022 Nov;24(11):2228-2239. doi: 10.1016/j.gim.2022.07.025. Epub 2022 Sep 2. Genet Med. 2022. PMID: 36053287 Free article. Clinical Trial.

7

Promoting equity, inclusion, and efficiency: A team science approach to the development of authorship guidelines for a multi-disciplinary research team.

Lewis H, Biesecker B, Lee SS, Anderson K, Joseph G, Jenkins CL, Bulkley JE, Leo MC, Goddard KAB, Wilfond BS. Lewis H, et al. J Clin Transl Sci. 2023 Nov 30;7(1):e265. doi: 10.1017/cts.2023.685. eCollection 2023. J Clin Transl Sci. 2023. PMID: 38229898 Free PMC article.

8

Demonstrating 'respect for persons' in clinical research: findings from qualitative interviews with diverse genomics research participants.

Kraft SA, Rothwell E, Shah SK, Duenas DM, Lewis H, Muessig K, Opel DJ, Goddard KAB, Wilfond BS. Kraft SA, et al. Among authors: lewis h. J Med Ethics. 2020 Oct 6:medethics-2020-106440. doi: 10.1136/medethics-2020-106440. Online ahead of print. J Med Ethics. 2020. PMID: 33023975 Free PMC article.

9

Most people share genetic test results with relatives even if the findings are normal: Family communication in a diverse population.

Hunter JE, Riddle L, Joseph G, Amendola LM, Gilmore MJ, Zepp JM, Shuster E, Bulkley JE, Muessig KR, Anderson KP, Goddard KAB, Wilfond BS, Leo MC; CHARM study team. Hunter JE, et al. Genet Med. 2023 Nov;25(11):100923. doi: 10.1016/j.gim.2023.100923. Epub 2023 Jul 5. Genet Med. 2023. PMID: 37421176

10

Literacy-adapted, electronic family history assessment for genetics referral in primary care: patient user insights from qualitative interviews.

Mittendorf KF, Lewis HS, Duenas DM, Eubanks DJ, Gilmore MJ, Goddard KAB, Joseph G, Kauffman TL, Kraft SA, Lindberg NM, Reyes AA, Shuster E, Syngal S, Ukaegbu C, Zepp JM, Wilfond BS, Porter KM. Mittendorf KF, et al. Hered Cancer Clin Pract. 2022 Jun 10;20(1):22. doi: 10.1186/s13053-022-00231-3. Hered Cancer Clin Pract. 2022. PMID: 35689290 Free PMC article.

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