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Methodological advances in patient-centered rare disease research: the UTHealth Houston Turner Syndrome Society of the United States research registry.
Orphanet J Rare Dis. 2024 Mar 11;19(1):112. doi: 10.1186/s13023-024-03120-1.
Orphanet J Rare Dis. 2024.
PMID: 38468317
Free PMC article.
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