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HDQLIFE: development and assessment of health-related quality of life in Huntington disease (HD).
Carlozzi NE, Schilling SG, Lai JS, Paulsen JS, Hahn EA, Perlmutter JS, Ross CA, Downing NR, Kratz AL, McCormack MK, Nance MA, Quaid KA, Stout JC, Gershon RC, Ready RE, Miner JA, Barton SK, Perlman SL, Rao SM, Frank S, Shoulson I, Marin H, Geschwind MD, Dayalu P, Goodnight SM, Cella D. Carlozzi NE, et al. Among authors: shoulson i. Qual Life Res. 2016 Oct;25(10):2441-2455. doi: 10.1007/s11136-016-1386-3. Epub 2016 Aug 13. Qual Life Res. 2016. PMID: 27522213 Free PMC article.
Detection of Huntington's disease decades before diagnosis: the Predict-HD study.
Paulsen JS, Langbehn DR, Stout JC, Aylward E, Ross CA, Nance M, Guttman M, Johnson S, MacDonald M, Beglinger LJ, Duff K, Kayson E, Biglan K, Shoulson I, Oakes D, Hayden M; Predict-HD Investigators and Coordinators of the Huntington Study Group. Paulsen JS, et al. Among authors: shoulson i. J Neurol Neurosurg Psychiatry. 2008 Aug;79(8):874-80. doi: 10.1136/jnnp.2007.128728. Epub 2007 Dec 20. J Neurol Neurosurg Psychiatry. 2008. PMID: 18096682 Free PMC article.
Motor, cognitive, and functional declines contribute to a single progressive factor in early HD.
Schobel SA, Palermo G, Auinger P, Long JD, Ma S, Khwaja OS, Trundell D, Cudkowicz M, Hersch S, Sampaio C, Dorsey ER, Leavitt BR, Kieburtz KD, Sevigny JJ, Langbehn DR, Tabrizi SJ; TRACK-HD, COHORT, CARE-HD, and 2CARE Huntington Study Group Investigators. Schobel SA, et al. Neurology. 2017 Dec 12;89(24):2495-2502. doi: 10.1212/WNL.0000000000004743. Epub 2017 Nov 15. Neurology. 2017. PMID: 29142089 Free PMC article.
Predictors of nursing home placement in Huntington disease.
Wheelock VL, Tempkin T, Marder K, Nance M, Myers RH, Zhao H, Kayson E, Orme C, Shoulson I; Huntington Study Group. Wheelock VL, et al. Among authors: shoulson i. Neurology. 2003 Mar 25;60(6):998-1001. doi: 10.1212/01.wnl.0000052992.58107.67. Neurology. 2003. PMID: 12654967
246 results