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Patient involvement in medical research: what patients and physicians learn from each other.
Orphanet J Rare Dis. 2019 Jan 24;14(1):21. doi: 10.1186/s13023-018-0969-1.
Orphanet J Rare Dis. 2019.
PMID: 30678705
Free PMC article.
Impact of vasculitis on employment and income.
Barra L, Borchin RL, Burroughs C, Casey GC, McAlear CA, Sreih AG, Young K, Merkel PA, Pagnoux C; Vasculitis Clinical Research Consortium and the Vasculitis Patient-Powered Research Network..
Barra L, et al.
Clin Exp Rheumatol. 2018 Mar-Apr;36 Suppl 111(2):58-64. Epub 2018 Jan 10.
Clin Exp Rheumatol. 2018.
PMID: 29352849
Free PMC article.
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Effects of the COVID-19 Pandemic on Patients Living With Vasculitis.
Banerjee S, George M, Young K, Venkatachalam S, Gordon J, Burroughs C, Curtis D, Ferrada M, Gavigan K, Grayson PC, Kullman J, Danila MI, Curtis JR, Shaw DG, Benjamin Nowell W, Merkel PA; Vasculitis Patient‐Powered Research Network.
Banerjee S, et al.
ACR Open Rheumatol. 2021 Jan;3(1):17-24. doi: 10.1002/acr2.11204. Epub 2020 Dec 8.
ACR Open Rheumatol. 2021.
PMID: 33784021
Free PMC article.
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Diagnostic delays in vasculitis and factors associated with time to diagnosis.
Sreih AG, Cronin K, Shaw DG, Young K, Burroughs C, Kullman J, Machireddy K, McAlear CA, Merkel PA; Vasculitis Patient-Powered Research Network.
Sreih AG, et al.
Orphanet J Rare Dis. 2021 Apr 21;16(1):184. doi: 10.1186/s13023-021-01794-5.
Orphanet J Rare Dis. 2021.
PMID: 33882989
Free PMC article.
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Assessment of Cutaneous Vasculitis and Quality of Life.
Mann S, Hussain A, Dua AB, Patrone A, Larson K, Merkel PA, Micheletti RG; Vasculitis Patient-Powered Research Network.
Mann S, et al.
JAMA Dermatol. 2023 Jun 1;159(6):667-669. doi: 10.1001/jamadermatol.2023.1108.
JAMA Dermatol. 2023.
PMID: 37163275
Free PMC article.
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Development and validation of case-finding algorithms for the identification of patients with anti-neutrophil cytoplasmic antibody-associated vasculitis in large healthcare administrative databases.
Sreih AG, Annapureddy N, Springer J, Casey G, Byram K, Cruz A, Estephan M, Frangiosa V, George MD, Liu M, Parker A, Sangani S, Sharim R, Merkel PA; Vasculitis Patient-Powered Research Network.
Sreih AG, et al.
Pharmacoepidemiol Drug Saf. 2016 Dec;25(12):1368-1374. doi: 10.1002/pds.4116. Epub 2016 Nov 1.
Pharmacoepidemiol Drug Saf. 2016.
PMID: 27804171
Free PMC article.
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